RSS

Tag Archives: post-polio

Finally……An Update!

Bubba At Four

This was in the early part of 1960 just a few months after coming home from treatment at the Warm Springs Foundation Hospital. I had just turned four years old.

I would have to go back and review my previous posts on this blog to know for sure when my last one was published but I believe is was just about one year ago this month. I have no excuse other than having too much on my plate and forgetting to return to update. I personally hate it when I go to websites and blogs that aren’t maintained on a regular basis. I honestly believe it not to be the fault of the owners, often circumstances beyond their control can come up.

I won’t go into too much detail right now (to be continued…lol) but will say this past year has been a challenge with it’s ups and downs, but then again, that is life.  I will say this, my faith, my Christianity, patience, psychological, mental and physical health have all been tested to the limit but I have held strong.

A certain individual has recently offered to help me improve and collaborate with my website, “Polio Survivors of the 21st Century” in the new year 2015. This site is very important to me as it is a non-profit site I have dedicated to all polio survivors in hopes I can provide constant up to date resources. Once a vaccine for polio was discovered, polio victims/survivors were forgotten, literally. Physicians, healthcare professionals, health insurance companies, healthcare organizations, hospitals and the public no longer had knowledge of the care Post-Polio Survivors needed.

Many of us gave our all to dedicate our lives to others. The majority of us had/have a Type A personality where nothing and no one could slow us down! Unfortunately it caught up with us. The polio virus affected neurons in the spinal cord (right on down from the brain stem). It killed off selected ones, left some and damaged others. The polio survivor learned to compensate, allowing the damaged neurons to take over the extra burden of those killed off. In later years, those damaged neurons became over used along with the aging process and new battle began. “Post-Polio Syndrome” became another battle for the polio survivor to deal with.

I was once heavily involved in tobacco abuse but through the years found it was saturated with many, many websites and support groups and often times these groups and websites refused to collaborate with one another but to compete. For me I began to get frustrated that I wasn’t really helping anyone and there were plenty of others happy to step in and fill the void I might have left.

I come to realize, after getting to know Dr. Richard Bruno (the world’s top most expert in PPS), observing outdated websites and reading posts in only a handful of existing FB Support Groups, maybe my help could be worthwhile. Now I would like to concentrate my efforts on all I can to let other polio survivors know they are not alone. We are one community and we need to stand together, help one another an forget petty disagreements. Non-profit Organizations need to be scrutinized carefully, very carefully when they claim they are helping Polio Survivors. Donations to any organization should be carefully thought out and researched.

Even at my age, I am still learning, I make mistakes, lots of mistakes but I will NEVER allow family, friends and my beliefs along with polio survivors to be abused or misled in anyway if I can possibly help it.

Okay, I have kept those reading this for way too long. I do tend to ramble but will try to keep this blog going and announce any updates to my (almost like a child to me) website, “Polio Survivors of the 21st Century“.

One last thing, I have bad grammar, my spelling is not always good even with spell check, I often put my foot in my mouth with some of my writing and worse……I have a sarcastic dry sense of humor. Just wanted to warn y’all.

Respectfully,

Bubba (James)

“To Thine Own Self Be True”

Advertisements
 
Leave a comment

Posted by on December 20, 2014 in Uncategorized

 

Tags: , , , , , ,

My Feelings About Early Retirement & Being Blessed

Having Faith

Having Faith

As usual…..

 It has been awhile since my last post. I had hoped to maintain this blog on a regular basis, mainly as a journal of my current life dealing with my physical, mental and psychological post-polio symptoms. Then of course there is the natural aging process that we must all go through.Currently I continue to work in a job I love but can no longer put in 40 hours a week and have had to cut down to maximum of 30 hours a week by going on Family Medical Leave and using my accrued sick leave. I was able to get a prescription from my neurologist to allow me to work fewer hours. Unfortunately I’m still not sure he understands post-polio symptoms as few doctors do. As Dr. Bruno calls it, The Polio Paradox hits the nail right on the head. PPS is a contradiction in itself. It is frustrating to have to try and convince my doctors my symptoms are post-polio related. Now I am asking myself, “Why should I care?” I have gotten to the point I really don’t anymore.

         As for my decision to retire……a few months back I sat in a hospital room for two hours watching a co-worker die from breast cancer. She was in a coma on life support but I talked with her and prayed over her. I knew all was well when the Holy Spirit came over me. She had to take early retirement because it came down to my employer keeping me or her. They kept me on which allowed me to reach my 30 plus years as my co-worker had done. She never forgave me (but I think as a Christian she did, in her own way, I feel sure of it) even though it was out of my control. Her sister later told me it was the best thing that could have happen to her, she was given time to do volunteer work for her Church, spend more time with her family and most of all watch her only grand-daughter grow into a fine young lady. After leaving her hospital room, kissing her on the forehead and letting her know “it is ok to let go”  (two hours later the family took her off life support). As I drove away from the hospital, a thought came over me, “Bubba, it is time to stop working. You have to think of your health and maintaining your independence. Money is important to maintain my independence but my health is more important.” I went back to the office and the next day I typed my letter of intent to retire as of January 31, 2014. As the time approaches, I have mixed feelings.  Physically I grow weaker but try not to dwell on that, mentally I have become more forgetful and without rest have difficulty speaking and organizing my thoughts. For that reason I hate to talk on a phone because it can get a bit embarrassing. Psychologically, I feel I am withdrawing more and more from others but having faith and a belief in Jesus Christ along with great friends I will get through anything thrown my way!I feel strongly that all things happen for a reason and I am trying to convince myself, all will be well, I am making the right decision and God will get me through this……..he always has and always will.

   For anyone who has read my posts then you know about “Birdy”. She is doing great! That little dog can be dense at times but she is smart and entertaining. No one could ask for a better dog. She seldom barks, is full of life and energy, wants to stay at my side or at least in her eye sight and will pout (walking away slowly with her head held down) when I have to leave her for work or when it is bed time. It took awhile to dawn on me but I’ve learned to love her and she is a gift from God. There was a very good reason it was meant for me to rescue her from certain euthanization.I hope to post again soon as I think it helps to sometimes be able to put my thoughts into words. As I sit here and type, now and then I glance out of my window seeing the palm tree I planted a few years back, growing full and tall, the green grass, the live oaks with moss hanging from the limbs……I could go on forever. I think what I’m trying to say is that no matter what life throws at us, with Gods help we can get through anything and when I look out of my window I’m thankful for my life and all God has blessed me with.

For the one or two who might read this, take care and when you have tuff decisions to make, trust yourself, leave it in Gods hands and try not to look at the negatives in your life but instead, look at the positives (blessings). If you look beyond the trees, you will find just how blessed you are.

 
3 Comments

Posted by on September 28, 2013 in Early Retirement, Mental, Pets, Polio, Quit Smoking

 

Tags: , , , , ,